The Reality of Inaccurate Realities

Social media isn’t very healthy for people who suffer from depression.

It’s a minefield of platitudes and rah-rah wrapped in generalizations and self-help wisdom, of superficial relationships that are given the illusion of intimacy by heightened and frequent communication that feels personal, accessible, and real. It’s rife with opportunism and insecurity, the scrabblings of people desperate for friendship and approval and each hoping quietly that the person on the other end is as wise and soulful as they appear. Maybe they are our salvation. Maybe they are our escape from the reality that is ourselves. Maybe they really are different.

And those, then, who are already fragile are too often let down by the shiny trappings of what each of us want the world to observe and believe about us. The facades that we erect. The selective picture we draw about our worlds, our lives, our attitudes and our minds. Myself included.

The reason that depressed people don’t seek help on social media is because of the very nature of our online selves.

We are often unkind. Impatient and self-serving. We are more eager to speak than to hear. We are happy to grant a comment or a smiley face…but that’s the extent to which most of us are willing to go for a person we hardly know. We love stories of struggle, so long as we can read the triumph at the end. We see people who hurt as negative, as needy, as seeking attention. All of which may be perfectly, tragically true.

How many of us have bought a plane tickets before we were asked so that we could be there for a friend who was in obvious distress? Sat awake on the floor of a Facebook friend to be sure they didn’t take all the pills or harm themselves with their razor in the night? Called the parents or the spouse of a stranger we’re familiar with on Twitter because we knew they needed help but didn’t know how to help them ourselves? Watched someone’s string of updates on Reddit somewhere and realized that somehow, we needed to get to them and soon?

The rarity of that is as much about us as it is about the willingness of those affected to ask for help.

We all want to believe we’re the savior, the hero. The one who was there when no one else was. That the connectivity of social media can be our salvation rather than our alienation. The thing that no one tells you is that being The Hero comes with a very real price.

To help someone – well and truly and when they need it most – may mean betraying a deep confidence. It often does, in fact. It means interfering where you’ve never been invited and probably don’t belong. Stepping over countless unwritten lines and betraying even more social contracts in order to “out” someone as hurt, troubled, in danger. and to risk being dreadfully wrong.

Do any of those things and you won’t likely get a “thank you”, or flowers, or a glowing blog post detailing how you saved someone’s life. You might even find yourself having to explain your actions, a fine line between reaching out in someone’s time of need and stalking them in their time of vulnerability. Gratitude and understanding on behalf of the person who is ill is likely long in coming, because they themselves don’t understand – or have perspective – on what’s happening to them. That’s why they don’t ask.

Depressive people hide their illness for many reasons.

For one, these illnesses are terribly misunderstood. People shy away from them as though they’re contagious, as though “mental” illness is even more catching than something like herpes or cancer or scabies and that if we associate with those kinds of people it makes us one of them.

We pronounce loudly our wars with everything from MS to arthritis to autism and wear ribbons and ride bikes, but we whisper our struggles with depression to ourselves, hoping no one hears, wishing that it was okay to share but knowing that “okay” still means that someone is looking at us like a freak, looking at our tattoos and our piercings and thinking how suitable they are for our angst, looking at our children and tsk-tsking that they should have to grow up with a parent who is so “troubled”.

It’s also horribly sensationalized, making it even less a normal and common thing that many reasonable, successful people struggle with and more like the insidious, back alley disease that befalls strung-out addicts chewing their nails and pulling on their hair and needing a shower as much as they need a fix.

When depression is pictured as the affliction of the “person next door”, it must be causal: someone had a death in the family, they just went through trauma or loss, they’re suffering post-pardum depression. It must have a trigger because normal people like that aren’t just depressed for no reason. They have to have a reason. Because otherwise, they have everything to live for. Right? How selfish of them to wallow in so much self-pity.

Social media gives us every possible tool to keep up these assumptions.

These platforms are superficial. Fleeting. Forgettable. Incidental to our daily lives. They’re used to show the world what we want them to see, because both the extremes and the mundane of everyday life aren’t attractive or interesting or the stuff that people retweet. They are driven by attention deficit and fueled by sparks of life and reality seasoned with a good dose of Photoshop. And we love them.

There are exceptions. I’ve met some of the most enduringly important people in my life in the last two or three years. But social media wasn’t the cause, it was the catalyst. Those relationships wouldn’t have survived without the tethers in reality (and many who started that way haven’t made the cut for the long term, for exactly that reason).

I also know that avenues like blogging have helped countless people find a way to talk about their depression or their bi-polar disorder or their anxiety and find lots of supportive, wonderful people who make them feel less alone and less like they’re struggling upstream in an invisible current. They’re there, and they’re wonderful. Then you read the comments sometimes, and you wonder just why in the hell they bother.

This all sounds like a lot of downers, but I’ve been thinking heavily about this as I prepare a very personal talk about my own journeys with depression and anxiety throughout my adult life. And as much as social media has enriched me in some ways, I feel like the responsible thing to do is also understand where it can be a deceiving set of pitfalls, expectations, disappointments and exposure for people who are suffering, who are fragile, and who are afraid. To talk about those things. To understand how communication both fuels understanding, and how it fuels cruelty and intolerance.

The same raw cross-section of humanity that is the internet can both lift someone up, and do them horrendous damage.

I’ve kicked this personal blog around for several years now, posting once in a while when I feel like it and using it more like a personal journal than anything else. But I’ve decided that just isn’t enough for me anymore. This domain will stay personal, but we’ll establish a new blog with this name, Inaccurate Reality I named it that many years ago, probably not really figuring that anyone would ever “get” what it meant, or why.

I’d like Inaccurate Reality to become my platform to discuss things like depression, anxiety, mental health, and to invite other people to share their stories and struggles. I suppose I realize the irony in that, this being “social media” and all.

But if nothing else, these technologies are by nature agnostic, and are instead shaped by the humans behind them. Our realities are often so inaccurate, so warped and distorted by the lenses we choose to look through and to see.

I have to believe I can do something positive with the voice I have, and give other people a platform where they don’t have to tell the shiny story, where there doesn’t always have to be a happy ending, where they can struggle and rage and show that life with these illnesses is anything but 140 perfectly manicured characters of wisdom and acceptance.

Mental illness is messy. And that’s a side of it that I think more of us need to know and understand — and be willing to see.

The talk I spoke of will be posted here after I give it on November 2, 2012 at TEDXPeachtree. I’m still writing it. For all of our sakes, I hope to hell it doesn’t suck. And I hope it helps more than a few people.

In the meantime, if you’d like to share your story, questions, experiences or thoughts about depression, anxiety, or other types of mental illness here on Inaccurate Reality, email me and let me know. I’d love to help give your perspective and world a voice, if you’re willing.

To all those who have struggled, nearly lost, won, and still battle these demons, fight on.

To those who have lost, we fight for you.

  • http://www.lornepike.com/pikespeak Lorne Pike

    Great insights on social media with all its open doors and open traps, Amber. Thanks for that. And I think virtually all of us can identify with both sides of the connections we make here, although the impact is no doubt intensified for those who are already struggling with depression or self-image challenges. I have no doubt that your writing and TEDx talk will help at least a few people comment and share with a better heart, and help others receive those comments with a clearer understanding of what those words do and don’t mean.

    Best wishes with it all; keep up the communicating. And thanks for being you!

    • http://brasstackthinking.com Amber Naslund

      Thank you, Lorne.  I’m looking forward to giving the talk and hoping that it gives someone the courage to speak up, to get help, or simply to breathe a little easier knowing that they aren’t alone. Thanks for reading.

  • nancymyrland

    Bravo, Amber, for helping more of us understand more of the reality of depression.  I admire you for many reasons, but one of them is definitely that you take the chance to bear your soul when things aren’t right. Half-way through your post I thought to myself that Social Media have helped me learn more about what’s really out there, what people are going through every day, the struggles and joys, and that has helped me become more aware, for which I’m thankful.  I’m happy I “know” you in these spaces, and certainly hope I somehow get to know you face-to-face one of these days.  

    • http://brasstackthinking.com Amber Naslund

      We spend a lot of time online trying to make sure that people see the best of us, mitigating our failures and our weaknesses and troubles. And while there’s definite difficulty in interacting with someone who is in dark places all the time (most likely in desperate need of help they don’t have), struggles are a VERY real part of our humanity. And mental illness is so, so prevalent – as many as 1 in 10 adults are affected, and those are just the ones who are diagnosed – that it’s criminal how much we make it taboo to discuss these things. Thanks for your support, Nancy. It’s much appreciated.

  • Steve Woodruff

    Social media is humanity at light speed; with fewer borders, but, humanity still – the good, the bad, and the messy. We can hide behind those 140 characters, or we can use them as introductions to the stories of our lives. I, for one, am glad to know you’re on the road with me, Amber. The world is less lonely knowing that others understand some of the not-so-shiny corners of our scrambled souls.

    • http://brasstackthinking.com Amber Naslund

      That last bit is golden, Steve. Indeed it is, and scrambled souls they are. :)

  • http://twitter.com/megtripp Meg Fowler Tripp

    I’m really thankful you’re speaking, and that you’re walking honestly through this experience. I can’t imagine it’s easy, just as I can’t imagine it’s easy to be “known” by so many who don’t really know. I’m blessed that we have friendships in common, and that I’ve had the pleasure of your company a few times. I’m happy to support where you’re headed, and to hear the story as it evolves. Thank you for being you.

    • http://brasstackthinking.com Amber Naslund

      Thanks, my friend. The people who know me best know this about me and accept me unconditionally, even in the darkest of times. And I know we haven’t spent loads of time together, but I think you’re incredibly generous of spirit and a gentle soul, and I know you’re a wonderful friend to so many. I really appreciate your support and friendship, Meg, even if we’re in different cities and across the interwebs. :)

  • Byron Fernandez

    Beautiful Amber. Thanks for sharing, adding to the collective voice for this topic.

    • http://brasstackthinking.com Amber Naslund

      Thanks, Byron. Appreciate your reading as always.

  • Mandy Medlock

    thank you for your honest and thoughtfulness - I look forward to following future posts!

    • http://brasstackthinking.com Amber Naslund

      Thank you, Mandy!

  • Hoffpam

    Thank you for an honest and unvarnished essay on the stigma, effect, experience, and potential pitfalls of depression and social media. Reading it was like a breath of fresh air!

    • http://brasstackthinking.com Amber Naslund

      Thank you! I’m glad you thought so. Appreciate your stopping by to read.

  • amoyal

    Thanks, as always, for your willingness to raise these topics – Indeed – I worry that not just depressed people but a lot of people who haven.t found inner validation seek it out in social media. Every RT, like, click, view, subscribe, comment, reply, follow/unfollow somehow an indication of what people think of them as people and the assumption that people care as much as they say they do or don’t care because they’re not responding. It’s part of the reason I try to steer the metrics away from those types of actions and why I have really pulled back my social media presence in general. But as you know, my annual HugTrainUSA trip will continue – with its mission to remember those that are forgotten in real life – by offering virtual hugs to those who ask twitter for them and by travelling around the US every year for two weeks at Xmas time offering real hugs – Every year it has been in memory of someone who has lost the fight and a bid to help others fight on because virtual hugs only go so far and even then people only know to give those when people ask for them! Fight on everyone and if you want a real hug from the HugTrainUSA crew or want to hop on the train let me know! *HUGS ALL AROUND*

    • http://brasstackthinking.com Amber Naslund

      Social media can be incredibly superficial, and deceiving. But I think part of it is what you expect of it, and what you make of it. That requires a certain level of reality check going into it in the first place. Best of luck with HugTrain USA this year!

  • http://www.mightycasey.com/ MightyCasey

    Depression, and mental illness in general, is so invisible, and still so stigmatized, that it’s incredibly difficult for people who live with it (patients *and* families) to get much rhythm at all from the rest of the world.

    Talking about depression will never fit neatly into 140 chars (cancer doesn’t either, nor does diabetes, or MS, or …), and it’s too easy to discount mental illness as something that the person that has it can snap/work/climb out of. Chronic clinical depression is easily as difficult to live with as any other chronic condition. In fact, many people who deal with other chronic diseases like MS or diabetes wind up living with depression, too.

    I spend much of my non-business-related SM time in #hcsm communities of one kind or another. If you haven’t joined in any of those discussions, I highly recommend wading/diving in. The Society for Participatory Medicine (I’m a member) has had plenty of discussions on our boards about depression. (http://www.participatorymedicine.org). It’s a semi-wonky group of really diverse/interesting peeps working to make healthcare, which definitely includes care for mental health, a collaborative setting for patients and clinicians.

    I look forward to seeing your TEDx presentation – wish I could see it live, but the date’s got a project lying directly on top of it. I know you’ll kill it.

    • http://brasstackthinking.com Amber Naslund

      Thanks for the discussion group recommendations, Casey. I’ll give them a look and maybe someone else will find them useful too. I’ll post the TEDx talk online as soon as I’m able.

  • pixie

    thank you, dealing with this now…and it’s hard.  One online friend I have met a few times was “oh hope you feel better soon”…another a barely knew was “What can I do for you?”  Sometimes online is way easier to be a super supportive person you really aren’t…and then real life intrudes.  

    • http://brasstackthinking.com Amber Naslund

      Very hard, indeed. That’s when I have to turn off the online world and lean on my family and the few (and I do mean few) real world friends I have that know and understand that side of me and aren’t going to offer a bunch of empty and temporary pleasantries.

  • http://www.facebook.com/profile.php?id=715221385 facebook-715221385

    One of the things people don’t talk about is how if your business is built around online and social media you can’t afford to show your true feeling a lot of the time, many think of it as a sign of weakness. So while some people wear their heart on their sleeve and tell us EVERYTHING, most of us who are public about so much have to stuff the negatives down and put on that plastic happy face. 

    That’s not always easy to do and I applaud you for taking a stand and talking about depression so openly. Can’t wait to see your TED Talk. You’ll be brilliant, because…well because you ARE.

    • http://brasstackthinking.com Amber Naslund

      That’s a very real risk I’ve taken (with the full support of my business partner, Matt Ridings, I should add). I’ve developed a presence on social media and my personal and professional lives are very intertwined online.

      I think it’s a matter of balance; my depression and anxiety are part of me, but they don’t define me. And it’s important to me that what I convey online is at least somewhat a realistic picture of who I am. None of us share everything, but I believe the more that people talk about things like this, the more normalized it becomes…and hopefully less scary for other people to see and deal with.

  • http://www.secretsushi.com/ Adam Helweh

    Thank you for being brave and stepping up to discuss this. As someone said here in the comments, it’s not at all easy to discuss these things publicly online when you’ve built a business off from your social media presence. 

    • http://brasstackthinking.com Amber Naslund

      No, it isn’t. But here’s what I figure. If someone isn’t going to do business with me because they find out I have a history of depression and anxiety, I don’t want their money. I value the caliber of people I work with as much as I do the work itself. Thanks for the comment, Adam.

  • http://twitter.com/CrazyOnYou CrazyOnYou

    As someone who’s suffered from/coexisted with depression for all of the life I remember (the psychological triggers/causes go back to my elementary school years and the physiological causes are probably hereditary), THANK YOU. It takes guts to admit that you have a problem, something that isn’t perfect in your life. I remember the mixture of thrill and sorrow reading “The Bell Jar”, realizing that there was somebody who could understand and explain how empty I felt during depressive episodes, but also realizing that only somebody like Sylvia Plath who had been through that desolation could recognize it by its description.

    I’ll be cheering for you and your speech. I don’t have any platitudes to share, or promises that it will all go according to your hopes or expectations, but know that you *are* making a difference. Shining a light on the fear is the first step to facing it and robbing it of power. By taking the step for yourself, you are empowering countless others to do it for themselves.

    On a personal level, I’ve appreciated our limited interactions and have always (and will continue to) thought of you as one of the Good People. If I can ever help, please don’t hesitate to let me know.

    • http://brasstackthinking.com Amber Naslund

      Hell, I don’t believe in perfect lives. I just believe in the filters we choose to use to the outside world.  And I don’t need platitudes, but your encouragement is fantastic. Thanks so much for commenting, for being open and honest about your own experiences, and for being here.

  • http://amyvernon.net/ AmyVernon

    Your title doesn’t do your post justice. But I don’t really know what title would have. As someone who’s faced many of the same demons, just mostly before social media came to the fore, I applaud your openness about it. Until we learn to talk about these subjects without shame or stigma, we’re part of why that shame and stigma remain. Kudos to you.